Parents Sponsor Fundraiser To Fight Rare Disease

Written by The Two River Times. Posted in Featured, Front Page, News


Published on December 23, 2011 with No Comments

By Judy O’Gorman Alvarez

Haley and Amber Le Vine of Avon suffer from a rare, debilitating disease. But there are no colorful wristbands, walkathons or celebrity appeals to raise money for research to find a cure for SSADH, the rare metabolic neurotransmitter disease these sisters suffer from.
Succinic Semialdehyde Dehydrogenase

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